Mr. Li shared his illness with us very frankly. Mr. Li told us that he learned that he had moyamoya disease in 2065438+2007 65438+ 10. This sudden result broke the original quiet life of this family. After hearing that moyamoya disease is a rare disease, his wife fell into panic and anxiety. She can't sleep well every night, but she doesn't know what to do. Mr. Li has been treated conservatively in the best local provincial hospital for one year. However, the effect of this treatment is not ideal. During this year, Mr. Li's condition deteriorated rapidly, his memory declined rapidly, and his hands were often numb and unstable. A lot of strange things happened during this period, but now it seems that I feel very scared. For example, if you don't know the way, go to the wrong house, or even your relatives, the most terrible thing is that even the most basic common sense in daily life is gradually beginning to blur.
Mr. Li said, "once I was driving on the road and I couldn't even tell the traffic lights apart." When I meet the green light, I will stop, but when I meet the red light, I will continue to drive, causing myself to be almost in danger. " Having said that, Mr. Li actually gave a light smile. I don't know what his smile means, but as others, we always feel that Mr. Li's smile contains many meanings, including sadness and joy. What makes me sad is the hardship when I am sick, and what makes me happy is the good physical condition at present. It was this terrible experience that made Mr. Li really aware of the harm of the disease. The family decided to seek more effective treatment, and the real road to seeking medical treatment began. But this road to seeking medical treatment is not always smooth. Moyamoya disease is a rare disease. Some hospitals don't have this department at all, and some hospitals can't give specific treatment plans. Friends around me have different opinions, which makes the family more afraid. At this time, the provincial hospital that has been doing conservative treatment for Mr. Li gave surgical advice. The local hospital may be a problem of technical level or medical equipment. I recommend him to see Professor Jin Yongjian from Aviation General Hospital.
Mr. Li's wife is very careful. She inquired about all kinds of information about Director Jin, and finally came to the Aviation General Hospital with doubts, worries and hopes to find Director Jin. Mr. Li recalled seeing Director Jin and said, "I don't know why. When I first met Director Jin, I was inexplicably relieved and felt that I could be cured here. " After that, the hospitalization and operation were arranged smoothly. Not surprisingly, Mr. Li's operation was also very successful, which also pleased his family. Since his illness, Mr. Li's wife has been carefully accompanying him and giving him spiritual strength. Although Mr Li has recovered from a serious illness, he is still optimistic about life.
With the help of teacher Li's case, I would like to popularize moyamoya disease here. Moyamoya disease is a rare abnormal disease of the vascular network at the bottom of the brain, which is mainly due to the chronic stenosis or occlusion of the main blood vessels in the branches of the cerebral arterial ring, and then some abnormal small vascular networks similar to "smog" are bred. At present, the more advanced treatment method is the combined vascular bypass surgery done by Director Jin for Mr. Li. At the same time, I would also like to remind everyone that after the symptoms of persistent numbness, unstable authenticity and memory loss reappear, we must not underestimate them and go to the hospital for treatment in time. Of course, we also hope that all moyamoya patients can be as optimistic about the disease as Mr. Li and actively receive treatment.
Expert introduction
Name: Jin Yongjian.
Position: Director of Neurosurgery for Cerebrovascular Diseases, Aviation General Hospital of China Medical University.
Title: Chief physician, professor
Education: Doctor studying in Japan.
Professional expertise: Moyamoya disease combined with vascular bypass surgery, endarterectomy of carotid stenosis, microvascular decompression of migraine, neurological intervention and minimally invasive surgery for cerebrovascular stenosis, cerebral infarction, cerebral ischemia and aneurysm. He has successfully performed combined vascular bypass surgery for moyamoya disease in children (1 year) in China, and successfully completed carotid endarterectomy for elderly patients (83 years old).
Honors: Young neurosurgeon, awarded the title of economic and technological innovation model of Beijing health system in 2004. The first batch of Beijing fund projects 1, returned overseas students fund 1 and Tsinghua-Yuyuan Medical Science Research Fund 1 were obtained.
Academic part-time: Member of Neurosurgery Branch of Cerebrovascular Diseases in Kansai Region of Japanese Neurosurgery, Member of Interventional Medicine Branch of Beijing Medical Association (1st session), and Member of Nerve Injury Training Committee of the 2nd Chinese Medical Doctor Association.
Visiting hours: every Wednesday morning, Thursday all day.
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