Medical insurance, drugs and health

It can relieve the pressure of patients with rare diseases, because this group has not received public attention for a long time. According to media reports, starting from March 1 day, the new medical insurance catalogue will be updated soon. This new catalogue is the biggest drug category adjustment over the years, which not only adds innovative drugs that have just been listed, but also adds 7 kinds of drugs for rare diseases. According to relevant doctors, this medical insurance adjustment is a great boon for patients with rare diseases. Because of the rare patients who have been neglected by the society for a long time, they finally ushered in the reimbursement of medical insurance drugs. Although there are only seven kinds of drugs now, with the first increase, more kinds of drugs for rare diseases will definitely be added to the medical insurance catalogue in the future.

A doctor who has been engaged in the treatment of rare diseases all the year round said that although the incidence of rare diseases is relatively low, the pain suffered by patients with rare diseases is indeed enormous. Moreover, most rare diseases are inherited in families, so many families may have more than one patient with rare diseases, which makes these families affected by rare diseases face huge medical burden. In fact, with a population base of 654.38+400 million in China, even though the incidence rate is very low, the number of patients is also very large, so their demand for medical resources is huge. Moreover, with the continuous popularization of the national medical examination system, more and more patients with rare diseases have been found, and their demand for medical insurance is growing.

A spokesman for the Medical Insurance Bureau also revealed that these seven rare diseases are common and rare diseases, such as hemophilia and idiopathic pulmonary fibrosis. In the future, with the continuous strengthening of the medical insurance fund, some expensive rare diseases are also expected to join the medical insurance.

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Rare diseases are also called. Orphans? There are many diseases that often endanger health and life safety. On February 29th, 2008, the European Organization for Rare Diseases launched the first International Day for Rare Diseases, and designated the last day of February every year as the International Day for Rare Diseases. February 28th this year is the14th international rare disease day.

In fact, rare diseases are not rare. Ding Jie, consultant of the Second Expert Committee on Diagnosis, Treatment and Protection of Rare Diseases and vice president of the First Hospital of Peking University, said in an interview that in terms of a certain disease, rare diseases seem to be less than common diseases, but they involve many diseases, so it is not uncommon to add them up. On the other hand, China has a large population base, so the number of patients with any rare disease is also large. Thirdly, with the progress of medical science and technology, more and more unknown diseases have been diagnosed, among which rare diseases account for the majority.

Ding Jie said that in fact, nearly 80% of rare diseases are caused by heredity, and many of them are caused by single gene mutation. That is to say, in the process of human evolution, genes are always mutating. Therefore, diseases caused by gene mutation will continue to appear, and there may be rare patients around us.