As a family member of the patient, I want to share some personal feelings with you:
1, know the patient well.
As a patient, it should be very painful, followed by taking medicine and hospitalization. The key is their inner pain, which is not understood and accepted. Therefore, as a family member, we must understand him more, communicate with him more, care about him more, encourage him more, give him more support and give him more confidence. This kind of support and understanding is very important for him to overcome his illness.
2. Patients' families should have an optimistic and positive attitude.
You can feel the negative feelings of this disease in your own life. A few years ago, when I thought about my mother's illness, I wanted to cry. I felt guilty, and I felt a strange negative feeling. I felt that there was a big stone in my heart. But later, I felt I couldn't do it. Or I don't accept my mother's illness in my heart, which is not good for my mother, for myself and for my family. Therefore, slowly adjust your mentality, face up to your mother's illness, no matter how stubborn, understand and accept your mother, her pain, her pain. Only when people around us are optimistic and brave about the disease can patients have the confidence to face it and get support, and the understanding and support of such family members is even more valuable than doctors and drugs.
3. The combination of doctors' medication and psychological consultation.
Personally, I feel that the fundamental solution to this disease still depends on the psychological growth of patients. Is to let go of what she can't let go and accept what she can't accept. Only in this way can the disease be truly cured. Therefore, the key is to unlock the patient's heart. What are the functions of doctors and drugs? We should also believe in professionalism and science. If the patient is really in a state of seizure and danger, we must also intervene with him. Although drug intervention won't help her eradicate the root cause, she can control the patient first, and psychological counseling must be done on a relatively stable basis. If she has been in a manic state, nothing will happen.
Step 4 accept
Accept patients, accept diseases, accept all possible realities, and face them with an accepting heart. I believe it will be better.
Tired, but afraid of death.
Sometimes I really don't understand why I have to live such a different life. After a long time, I attribute it to fate. Maybe only the bad debts owed in previous lives can save my soul.
If money can change children's mental illness, I think many parents are willing to pay their debts for their children all their lives, but the fact is that no matter what you pay, you can't change the fact that children have mental illness.
This fact will be like a stone in my heart, always as depressing as being unable to breathe, and sometimes it will make people feel suffocated.
In fact, I still don't know whether my daughter is schizophrenic or bipolar. National professors have also seen it, and professional systems have treated it several times. I don't know which doctor is right. Some doctors say it's schizophrenia, while others say it's bipolar disorder. Targeted treatment has been done twice, and the child's state is not much better.
There are also doctors who say that my child is psychotic bipolar disorder, but I have no strength to judge and distinguish. The medication is almost the same, and the targeted treatment has no good effect. Is it necessary to know the answer?
Every time I send my child to the hospital, I have to work hard to calculate, otherwise I won't be sent to a mental hospital. I feel ashamed, too. The failure of children is the biggest failure of parents, so my life circle began to get smaller and smaller, and finally I resigned.
I will always remember what my husband said to her mother-in-law in tears after the child lost his temper when he came home from the hospital for the first time: Mom, my life is over. After that, my mother-in-law cried, so did I.
In the past four years, we have devoted all our energy to the treatment of children until the doctor said: it can only be controlled in this way, and we can only look at the development and changes of the disease in the future.
In order to facilitate medical treatment, my family moved to a third-tier city with a specialized hospital, and it is not far from the hospital.
The child is not unconscious. She even said that she was a useless parasite and didn't dare to look at her former classmates because they were all in college. I was also happy for a while: isn't this no different from normal people?
So, according to her wishes, let her learn technology, do odd jobs, exercise and do small business ... but the ideal is beautiful and the reality is very skinny. There's nothing she can hold on to. A few days is enough.
At first, I thought that the disease mainly depended on nursing, so I took medicine to accompany her to many scenic spots, but the fact told me that pinning the treatment of schizophrenia on tourism was a legend of burning money.
Because of drugs, the child is very fat, but he dare not stop taking drugs privately. Schizophrenia patients need to increase the dose every time they relapse. The greater the dose, the fatter it will be and the greater the damage to liver and kidney. So, I know that medicine has such a big side effect, but I'm still worried that she forgets to take medicine every day.
This year, the children's conditions are ok. For three years, she took her own medicine. I used to supervise her. Later, she resented that I was spying on her, so she took medicine by herself for the last three years. In the spring, the epidemic eased, and she asked her father to go to the hospital to buy more medicine to prevent the epidemic. And in the spring, even now, the epidemic has a great impact, and she is obedient and does not go out.
I usually go to the seaside to exercise and lose weight, but now I save it. I use hula hoop to lose weight indoors.
Because she failed to lose weight three times in individual institutions, she was encouraged to lose weight by herself, and she lost ten Jin and gave her 1000 yuan. It is difficult for mental patients to lose weight. Losing weight means stress and controlling their diet. A careless person may get sick. I lost weight three times with trepidation, but it didn't work. I gave my child a reward. Losing weight is not limited to time and diet. Now, the child got 3000 yuan from me, but after subtracting 30 Jin, she is still fat. You can imagine how fat people are.
My second child was beaten several times by my sister, but she only dared to cry behind my back: Mom, why is my sister so good-tempered and my sister so bad-tempered? I'm afraid of her. ...
My child, I want to know, I want to cry more, but I have already lost my tears.
Thank you for your invitation. Most of these families are unfortunate, not only financially, but also mentally and psychologically.
First of all, most of them are financial difficulties, because the patients themselves lose their ability to work, and at least one member of their family needs to resign to take care of and monitor the patients, and their financial situation can be imagined;
Coupled with the "shame" brought by the patient's illness and the discrimination and supercilious look of the people around him, the family members are facing great mental burden and psychological pressure.
Family members often say to us:
"I'm about to collapse!"
I also experienced the tragedy of a patient's mother who committed suicide because her daughter failed to heal after a long period of treatment, and she was overwhelmed and finally committed suicide.
It can be seen that the burden of life and mental stress are so great!
This requires our country to tilt and take care of these people with mental illness in the medical insurance policy and increase their reimbursement ratio;
Civil affairs departments at all levels and organizations of disabled persons' federations should also further increase subsidies and assistance, arrange employment for patients with mental disabilities as much as possible, and reduce their family burden;
Medical staff in mental health institutions at all levels pay more attention to the mental health problems of patients' families besides treating patients. In this regard, the Sixth Hospital of Peking University began to give weekly "health lectures" to family members as early as 30 years ago, which is an example for our industry to learn!
How are the families of patients with mental illness such as schizophrenia or bipolar disorder living? Patients with schizophrenia or bipolar disorder belong to a special group and need special care and support in the spiritual life between families. If the family members of such patients need to do family rehabilitation training, they need to do the following.
1. Take care of patients' daily life, work out a daily rest schedule with patients, and exercise in a planned way every week to prevent them from being lazy and doing nothing in bed.
2. Urge patients to continue to go to the hospital for regular review, especially according to the drugs, to receive psychological treatment and rehabilitation treatment from doctors, and not to reduce or stop drugs without authorization. Practice has proved that many patients will relapse within 3~5 months after stopping taking drugs.
3. Care about patients' mental activities, often talk with patients, take patients to participate in some social activities and cultural activities, cultivate personal interests and hobbies, and at the same time increase confidence in rehabilitation. If there are signs of recurrence, you need to seek medical advice in time to prevent recurrence of the disease.
4. To do a good job in family rehabilitation, family members should learn some mental health knowledge, participate in family health lectures held by community doctors, and work out regular rehabilitation training plans with community doctors to treat the best rehabilitation plan according to the actual situation of patients.
5. Strive for the support of all sectors of society. If the patient's unit and leading colleagues, relatives, neighbors, especially neighborhood committees, support the rehabilitation plan in various ways, remove all kinds of bad incentives, and relieve the patient, so that he may rest more and not work in the future. Some units let patients stay at home, pay fees as usual, and make patients inactive, which may induce the onset of diseases, hmm.
Therefore, there is such a patient at home who needs a really good person to arrange his daily life normally. If these conditions are not met, he can go to a local old-age care institution or a special psychological group institution, and a professional doctor will take care of his medication, including drug maintenance. This sanatorium is also the best choice for many people.
No, at least the lives of most patients' families have been greatly affected. After all, schizophrenia and bipolar disorder are serious mental disorders, and patients in the onset stage may indeed bring a lot of inconvenience or even danger to their families or people around them. However, there are also patients and friends whose mental symptoms completely disappear and live a completely normal life. This is related to the nature of the disease, but it is also closely related to the individual differences of each patient. Generally speaking, patients who actively cooperate with treatment and insist on treatment will definitely have better social adaptability than patients who do not actively cooperate with treatment.
It must be influential. Some families are falling apart because of it.
Among my patients, the most patients must be schizophrenics. I think this is also the sexual problem of any general psychiatrist who has worked for more than ten years. Why? Because schizophrenia is more serious, because schizophrenics often need to be passively hospitalized, because sometimes family members have no choice.
One of my schizophrenics is a woman in her fifties. Her husband was forced to divorce a few years ago because of her jealousy and delusion. But even so, he did not leave her. Instead, I have been living with her on the pretext that I don't have a house, taking care of her, helping her clean up and apologizing to her neighbors. Because patients have delusions of reference and murder, they always think that neighbors are harming themselves. Sometimes they deliberately dump garbage at the neighbor's door, or knock on the wall at night. Worst of all, they burned yellow paper in front of their neighbor's house, making the whole unit smoky and being caught by the police.
Although the husband is legally the ex-husband, he has always shouldered the obligation of guardianship, cleaning the corridor, eliminating the influence and sending her to the hospital for treatment. Is his ex-husband for many years. In his words, even if you get divorced, don't you still have a son (the son is out of town)? Still a family.
Therefore, her family has long been fragmented. Without her ex-husband, the patient may not know how to live. Even so, the ex-husband is exhausted, having to work and take care of her. This kind of life is really difficult for him.
Let's start with patients with bipolar disorder.
Bipolar disorder is still worse than schizophrenia in severity. Because although bipolar disorder itself will be chronic, it is actually an episodic disease, which can be completely relieved in a single episode. Therefore, patients with bipolar disorder in remission generally have better social adaptability. For example, a female patient who impressed me deeply before had repeated attacks a few years ago, so she lost her job in the institution, her love and her dignity. But after all, the paroxysmal disease still has a remission period. During the remission period of one year, the family arranged a blind date for it. Two young men and women fell in love and planned to get married after getting along for a while, so they even came to me for advice by train. Now that several years have passed, this female patient will also have obvious mood swings, and sometimes even have some delusional content. But it is this marriage, or the obsession with this marriage life, that supports her to survive the recurrence tendency again and again. There was no obvious attack in 4 years, and I didn't come to the hospital again in 4 years. Of course, medicine has been taken, because she knows that medicine is not her enemy, but a friend who helps her lead a normal life.
Generally speaking, some are unsatisfactory, some are unsatisfactory, and some really have little impact, and they can basically maintain a normal life. Want to reduce the impact on life, active treatment, adhere to the doctor's advice to take medicine, help is the greatest.
If a family has such a patient, the family must be very tired. Will bear the double pressure of economy and spirit. On the one hand, it is difficult to treat the disease, on the other hand, the patient does not cooperate. Therefore, this disease must be treated as soon as possible, and it can be cured in time so that it will not suffer. If the treatment is not timely, the serious development is likely to continue all the time, then the family will never have peace.
Society should set up an institution where hospitals and factories are merged. Some patients have labor force, so they can support themselves and reduce the burden of poor families. Life is stressful, and they are too young to get the disease. Mental illness is an untimely bomb, which is unsafe for people around it, whether at home or in society. We call on relevant departments and units to open this door for this group. [praying]
There is such a person around me, who is my sister's classmate. Because of taking medicine for many years, she is obese. Usually very tired, sleepy, unwilling to move.
Usually people are very enthusiastic and love to chat with others. If she doesn't talk, others won't see that she has the disease. However, she often suffers from depression and inferiority!
She cut her wrist when she was studying. Her mood fluctuates greatly. Once her mother was very worried about her. Fortunately, it was controlled later, and I got married and had children!
Fortunately, her family is rich, and the house and lathe are ready for her, so she has no worries! Now as long as she takes medicine regularly, it won't bring too much trouble to her family.
I am a psychiatrist and have met many families of patients with schizophrenia and bipolar disorder. Every time I see them and talk to them, I am actually full of respect for them, because I can patiently discuss the patient's condition with me and send the patient to treat the disease responsibly. Their hearts are actually very strong, and the pain they suffer is something we can't see. Because I have a good attitude towards patients and their families, they often talk to me and cry when they talk to me. Patients relapse repeatedly, do not take medicine, do not work, spend money indiscriminately, run outside, commit suicide and so on. Such diseases not only increase the financial burden of a family, but also increase the psychological burden. Many families break up because one member suffers from mental illness. As a psychiatrist, I really want to cure every patient and let them return to society as soon as possible, but no matter how hard I try, the progress of science can't keep up with the speed of diseases, and the existing medical technology can't solve all diseases. Here, I want to say to these families: you have worked hard!
My big brother and second brother are both. Under their influence, no one wants to marry into my family, but we all have a good life. I firmly believe that as long as we have jobs and a fixed income, I will not let them have food and clothing and accommodation problems. Being brothers in this life is the responsibility of the older generation, and it is our normal responsibility to make the whole family live well.