According to foreign incidence statistics, there are at least 65,438+10,000 hemophiliacs in China, but only 30,000 people are currently registered. ?
Hemophilia is a group of hemorrhagic diseases with hereditary coagulation dysfunction, with many types. ?
However, no matter what kind of hemophilia, there are several common characteristics: the production of active thromboplastin is blocked, the coagulation time is prolonged, and there is a tendency of bleeding after minor trauma for life, and in severe cases, there may be no obvious trauma. Spontaneity? Bleeding, etc. The most common bleeding in hemophilia is joint bleeding.
For a family, the cost of prevention and treatment of hemophilia is extremely high.
Although China's medical level is constantly improving and the cost of treatment is constantly decreasing, there are still many families that are unbearable and even bankrupt. ?
In order to help more hemophiliacs, Roche Pharmaceuticals, together with China Red Cross Foundation, China Hemophilia Collaboration Group, Beijing Life Oasis Public Service Center and Beijing Blood Friends Home Care Center, jointly held the China Hemophilia? 0 plan? China Blood Friends Children Survival Survey Conference.
China hemophilia? 0 plan? This kicked off.
But now, among the estimated100000 hemophiliacs, only 30% have successfully registered. ?
Why is this happening? ?
Personally, I think, on the one hand, it is due to insufficient publicity.
Many ordinary people may not have heard of it? 0 plan? Even if I have heard of this new term, I don't know what it is used for. ?
In the final analysis, the news did not reach the masses directly. ?
On the other hand, it is due to the suspicion of ordinary people.
I don't believe it. I can't believe it. For what? 0 plan? The existence and development of doubt.
After all, there are always a few people who want to eat crabs first. ?